Memory Lane 7/29/2010

The potty training thing is a new world for me. I have known for about 2 months that Sloane was ready to be trained but in classic fashion for us...I am dragging my feet. At first, it was an emotional problem for me because I just didnt want her to be a big girl. Next, it was a physical problem for me because we truly are never home. Now, it is mental problem because I am unsure of how I want to go about the potty training issue. Will I take the interval approach OR will I let Sloane go diaper free in the house for a few days?? Everyone has their opinions even our ped. 


So we have been plopping on our toilet here and there for the last month. There has been no "training" involved. Everyone is in on the action: "the machine" (our babysitter), nonni, mammie and ti-ti. We have Elmo books, Elmo dvds, and an Elmo sticker chart to promote potty training. Some days her bottom hits the seat there is a drip, drip, drip and other days there is silence. Well, yesterday I watched intently as Sloane played and I knew it was time. I plopped Sloane on the toilet and she did poop with no formal training at all. Very exciting!  

Back to Memory Lane 7/29/2010....

 Sloane was 9 days old. 

hi...okay so alan and i had some inside info last night and knew what the doctors were looking for today during sloane's scope which was done bedside and she tolerated like the strong woman she is.

it appears that sloane was born with a rare 1 in 20,000 birth defect called laryngeal cleft (lizzie im sure the sound of cleft makes you stop bc of what i said about sloane's last sonogram while i was in the hospital....ODD) im sure you will all start researching it. we did last night.

http://www.childrenshospital.org/az/Site1137/mainpageS1137P0.html

on monday, sloane will be put under anesthesia and brought to the OR for an more intensive scope to confirm the diagnosis as well as its severity. they will also look to see if there are any other issues. there are 4 grades to laryngeal cleft. after monday's scope we will have a plan of action of how to fix this. not much can happen right now or for months bc it was proven today that sloane has horrible acid reflux (maybe inherited from poppa charles...ha). her insides are terribly swollen. they have started her on meds immediately. obviously, she cant have surgery and then heal with acid reflux coming up and burning the area

depending on the grade...she will first come home with a feeding tube and have to heal the acid reflux irritation bf any treatment can happen. if its a grade 1 then she can try some therapy above that grade will mean surgery in later months. not only do we need to fix the reflux we need, the plumper the baby the better. she is is back up to 6 lbs!! YEAH!! they have done this surgery on babies at 2 or 3 months of age. the dr. was very nice and it would be done endoscopy. im sure we would get other opinions.

the dr said this is all speculation and can not be confirmed until monday. so please keep to yourselves until we know for sure.

sloane had a GREAT day today. she was awake lots and we sang and read books and had a sponge bath!! so fun!! during the bath she sneezed out a boogie that an adult would have!! it was crazy!! she is very nasally from the oxygen tubes! i wish you all could spend time with her bc she is just amazing!!

we are anxious for monday to have a diagnosis and to know when our baby can come home. its clear to us both that she will not be coming home anytime soon.

please pray until monday that we get and answer and can move forward. i dont think ill have any updates until then

xo, sloane's mommy and daddy