Sloane's 2nd birthday was a complete success! Her croup was much better in time for her big bash on Sunday. As I was hanging the Chinese lanterns, I wondered if all my efforts would be lost on my 2 year old. I had been planning, preparing and making lists for months. All was not lost though because Sloane loved it all. We had the 3 top things in her world....bubbles, Dels, and Elmo!! She was all smiles all day!!
On Monday, Sloane had her 2 year old doctor's appointment. Our ped was thrilled with Sloane's development. She grew 7 1/2 inches in the last year! Yup!! Daddy Long Legs!! I swear that 7 inches of the 7 1/2 are in her legs. And she gained 8 pounds!! Great Growth!!
It was a great day to have a drs. appointment because we were able to discuss the recent episode of croup. After putting our heads together and chatting, our ped isnt convinced that this last episode of wheeze and hoarseness in Sloane's upper airway was croup. Because since stopping Sloane's reflux meds we have seen her significantly reflux in front of us, the thought is that PERHAPS Sloane is silent refluxing frequently. That silent reflux maybe causing her airway to be irritated and swollen. A swollen and irritated airway is more narrow, therefore causing a wheeze and hoarse sound. The questions now are should we put Sloane back on reflux meds OR should we wait to see if Dr. Rahbar sees any evidence of reflux in her airway when he scopes her next month? Does Sloane have a more narrow airway as a baseline than other toddlers because of her abnormal development and the laryngeal cleft and that is why she has a more frequent low grade wheeze sound at times?
Back to Memory Lane
7/28/10 Sloane Jacqueline was 8 days old!
hi everyone, we had our swallow study today and although it did not give us the answers that we were hoping to hear it did rule out that Sloane is NOT having an issue coordinating her suck/swallow and breathe.
the ENT will be seeing us tomorrow bc at this point we can be sure that our blueberry has an abnormality/birth defect in her throat. something is not connected properly way up high bc she is aspirating into her lungs as soon as she swallows. i would have to 80% of the food goes into her belly via the esophagus and 20% went directly into her lungs. we will have a scope tomorrow so the ENTs can give us a diagnosis of why. there can be a connection issue, a small hole or a flap issue. these are purely speculation right now. we are trying to stay off the internet as tomorrow is almost here.
as for treatment, who knows, bc we wont know until we know what it is. some options repair in time meaning sloane would be on feeding tube until that happens or somethings can be repaired surgically in time. she may be too fragile for that right now. in the meantime, she continues to eat safely! they tell me whatever it is, she will come home :) and they will make it so that she is safe and make al of us comfy feeding her.
today confirmed for me that there is a GOD. i cant not believe that i was feeding sloane all those days and filling her lungs. thank GOD, everyone, that she did not come home and continue to eat.
she has been gaining weight so we are so happy....and they have upped her food intake at each feeding and she seems happier..she is a piglet!
i know that this is scary and not what we were hoping for but sloane is magical and this whatever it is will be addressed the best way we can. we are trying to be realistic and optimistic and we ask you to be the same! sloane's arrival in the world has not been what we envisioned right back to her start off in november until this moment and that just means she is EXTRA SPECIAL!!!!
i know that this is scary and not what we were hoping for but sloane is magical and this whatever it is will be addressed the best way we can. we are trying to be realistic and optimistic and we ask you to be the same! sloane's arrival in the world has not been what we envisioned right back to her start off in november until this moment and that just means she is EXTRA SPECIAL!!!!
my hope is that by saturday we will have an answer and she will have made some progress with the pneumonia. we hope when that happens that you can start to see her for a short visit.
as for now, id like to start decorating my blueberry's room..turning it from unisex to girly!!! so it is ready for her arrival.
and yes, im eating and sleeping some. poppy charles is here daily to tune me up and remind me that i am a mother now! no woes!
xo sloane's mommy and daddy
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