Sometimes my brother sends me these emails with hilarious pictures of people at Walmart clothed in a way that is absurd. The pictures are almost unbelievable. When I look at them I think seriously people go,out this way. Today as I walked into Texas Roadhouse to get to-go and I hoped no one had a camera......
Our day was a lovely one. As a matter of fact, we have had a great week so far. This morning we started our day with a visit to Dr. Reibman, our ped, for Sloane's 3 year old visit. I had no real concerns other than that I can't keep up with the amount of food Sloane is eating these days. I do not know where she puts it. For example, breakfast today was: a pancake, an egg covered in cheese, a yogurt stick, a handful of blueberries with some almonds to top it off! Sloane eats more than I do many days.
Our check in visit went well. There were no red flags.....im sure this is the way most check in/ well visits are for many children. We, on the other hand, have always had laryngeal cleft issues at all visits so today was quiet different for me in a wonderful way.
Sloane gained 5 1/2 lbs this year and grew almost 5 inches. The inches are in the legs!! It is ridiculous. In this house we say that our daughter keeps getting blonder and her legs keep getting longer.....2 things that aren't going to help at the marina in years to come!! Lol I didn't really have to go today with Sloane to see Dr Reibman. She handled it herself. Seriously! Answered all the questions and even elaborated on the whys at times. Proud was the word for how I felt today listening to her chat with her ped.
As soon as we hit the road with our "good job" lollipops in hand, we headed to the sandy beach. In this family, we either say we are going to the beach or the sandy beach. The beach is our family summer home and the sandy beach is in fact the sandy beach. Sloane and I spent the day jumping some waves and building some castles. This is the part that makes the day ever so lovely.....we take a very short drive to the beach house from the sandy beach. We clean up. One of us naps and the other reads, relaxes and rejunevates on a very comfy lounge chair. This post is surely not making my hubby smile with glee....lol
Today we decided to stay for Mammie and Poppie's arrival home. Sloane wandered around dipping into the pool waiting for the minutes to pass until her entertainment arrived in the form of 2 grown ups!! Once all the play was over thanks to mom, a tubby had happened, and every snack Mammie could offer had been grazed on, we headed home. My hubby, who is still recuperating but on the upswing....thank you GOD, was awaiting our arrival. He had told me many of times to stay at the beach, Sloane had begged many times to stay at the beach, Mammie and Poppie had reminded me many times tonight that I could stay at the beach but I wanted to come home. I offered to pick up supper on my way. It was the least I could do seeing as though I didn't cook it...lol
I pull into Texas Roadhouse looking for curbside pickup....it's no where to be found! I want to cry. Why? Well, let's just say I could have been photographed and put on one of those Walmart emails. I had given Sloane a tubby. She looked squeaky clean, smelled ever so fresh and was dressed in frilly summer get up. I, on the other hand, was a freakin mess. Bathing suit still on under a stained coverup. Hair sandy and thrown in a ponytail and I'm pretty sure I still had sand layered on my calves. It was 7pm and truly was these was no reason for me to be this a mess. I was a white trash scene that was going to have to walk into...yes inside....Texas Roadhouse during the very busy dinner time rush. I threw Sloane on my hip and hoped for the best.
All I could think was no flash photography...please!
Wednesday, July 31, 2013
Thursday, July 25, 2013
Half Way There
Can it be?? Is Sloane really 3??? Our family celebrated Sloane's 3rd birthday this past weekend with a Fresh Beat Band party complete with a concert preformed by my little rockstar. Saturday, July 20th, was her actual birthday so I spent the 48 hours surrounding that day thinking back to life 3 years ago. It has been truly a fantastic journey that has helped all three of us grow as a family. I cant help but reflect on where we have been and how much more relaxed we have become in our Laryngeal Cleft world.
We have been on the go for the past month with nothing more than normal summer activities. My apologies for my disappearing act. I am always bothered by the blogs that just stop with no for warning and I do not want to be one of them. I was surprised to see that over the past month we gained a significant amount of readers from over seas!! Very exciting. I did stop to wonder if a Laryngeal Cleft is becoming less rare based on the searches that followers are doing to end up at A Sip Of Heaven.
I cant believe it is mid-July. Now, most people say...... only 6 weeks until summer is over. I say "we have made it half way thru the summer without any illness" and then there is a big knock on wood!! Our appointment with Dr. Rahbar is September 17th. If Sloane stays healthy until then, surgery is not a definite. It is optional based on our thoughts about her progress and her swallowing experiences over the summer.
Sloane has been having more experiences drinking from an open cup and I have to say she is doing a very good job. It, of course, is supervised as it would be with any 3 year old. She has even started to put straws in bottles and manage the drinking process herself. There have been moments of aspiration. That is clear, but in my heart or hearts I truly believe it is a volume control issue. Sloane takes too big of a gulp and then can not process the swallow efficiently. I am sure this is a laryngeal cleft issue and a normal toddler concern.
My hubby gives Sloane the royal privlege of spitting out her gulp if it is too big. She adores this new rule. Too much if you ask me!! So I have in classic helicopter mom started monitoring the size of the sip to see if it "spit it out" worthy. LOL
I am blogging today from an unlikely spot. Usually its from my couch after the lights have been turned off. Today, though, it's from the surgical waiting room at Mass Eye and Ear. My hubby is having, yet, another surgery later today. We are on the once a year schedule....lol! Now, this procedure is not life threatening, but nevertheless it is surgery and not ideal. When we arrived today, I saw a child with what appeared to be a considerable eye issue and at that moment I thought......Sloane's eyes.....God Bless them! A laryngeal cleft is one thing but eyes are a whole other bag of chips.
We have been on the go for the past month with nothing more than normal summer activities. My apologies for my disappearing act. I am always bothered by the blogs that just stop with no for warning and I do not want to be one of them. I was surprised to see that over the past month we gained a significant amount of readers from over seas!! Very exciting. I did stop to wonder if a Laryngeal Cleft is becoming less rare based on the searches that followers are doing to end up at A Sip Of Heaven.
I cant believe it is mid-July. Now, most people say...... only 6 weeks until summer is over. I say "we have made it half way thru the summer without any illness" and then there is a big knock on wood!! Our appointment with Dr. Rahbar is September 17th. If Sloane stays healthy until then, surgery is not a definite. It is optional based on our thoughts about her progress and her swallowing experiences over the summer.
Sloane has been having more experiences drinking from an open cup and I have to say she is doing a very good job. It, of course, is supervised as it would be with any 3 year old. She has even started to put straws in bottles and manage the drinking process herself. There have been moments of aspiration. That is clear, but in my heart or hearts I truly believe it is a volume control issue. Sloane takes too big of a gulp and then can not process the swallow efficiently. I am sure this is a laryngeal cleft issue and a normal toddler concern.
My hubby gives Sloane the royal privlege of spitting out her gulp if it is too big. She adores this new rule. Too much if you ask me!! So I have in classic helicopter mom started monitoring the size of the sip to see if it "spit it out" worthy. LOL
I am blogging today from an unlikely spot. Usually its from my couch after the lights have been turned off. Today, though, it's from the surgical waiting room at Mass Eye and Ear. My hubby is having, yet, another surgery later today. We are on the once a year schedule....lol! Now, this procedure is not life threatening, but nevertheless it is surgery and not ideal. When we arrived today, I saw a child with what appeared to be a considerable eye issue and at that moment I thought......Sloane's eyes.....God Bless them! A laryngeal cleft is one thing but eyes are a whole other bag of chips.
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