"A Mom in London" thank you for your comment. Please contact me again and leave your email. I would love to correspond as well as answer any questions you have!
Hi,
I am another mom who is extremely grateful for this blog. My daughter was born six months ago with a long type 2 laryngeal cleft. She also was diagnosed early and has no genetic or developmental issues. Your blog has been one of the only sources of useful information I have been able to find. Your story gives me hope and has also helped prepare me for what may be ahead. We are living in Europe at the moment, but will be seeking treatment from Dr Rahbar. I would love to get in touch via email if you would be interested. Your little girl sounds like a real joy and I am glad she is doing so well. Thank you again!
A Mom in London
Life in Sloane's world is great! We have battled a constant runny nose, ear infections, junky coughs and the stomach flu for a week this past winter but we have made it thru :)
Sloane is back on her inhaler once a day. Mid-February, the junky cough got the best of us. It had permanently resided in Sloane's lungs so our ped suggested starting back on the inhaler. And it worked! Not sure how long we will use it for??? Taking it one week at a time!
It is obvious that Sloane needs her inhaler for airway issues. Whether or not they are related to the cleft isn't as important to me as it used to be......Each month, we inch further and further away from the life altering effects of the LC. Which is almost unbelievable!
What is also unbelievable........that A Sip Of Heaven has had over 15,000 views!!! OMG!!!
