Memory Lane 7/26/10

Today I realized that you need a freaking college degree to put a sippy cup back together! Dear Lord!! It doesnt help that we have about 10 different kinds here. I spent 15 minutes figuring out which straw went with which cup and how the mechanisms went back into place. I did decide after this process to get rid of the cups that were no longer in rotation either because their flow was too slow for the thickened liquids or because Sloane was into that one. She certainly has her favorites cups and her favorites drinks. 


Right now, DEL'S is all she wants to drink. She LOVES it!! We try to limit this treat to a couple of times a week (can we say sugar) but Sloane will ask for it daily!! And then she will sit quiet as a mouse with a spoon dishing it into her mouth. She never misses a DEL'S logo anywhere she sees one and the says "I waann Delsh!" It honestly is hysterical! Needless to say, we are having DEL'S at her party this weekend!! 


2 years ago, I would have never imagined that Sloane would be able to drink out of a cup or be able to decide what she would like to drink. I couldn't see beyond the laryngeal cleft aspirations, feeding tube and the allowed sip here or there. It was amazing to watch her suck down 8 ounces of thickened water last night with dinner like it was nothing!! 

Back to memory lane! Here is the email sent on 7/26/10 from the NICU. Sloane was 6 days old. 

hi, although we dont have any answers today about sloane, we do have a plan in place. as of right now, sloane will no longer be eating through her mouth. the drs. are afraid that she is still aspirating fluids bc her xray today did not sure as much improvement as they were hoping for. she is being feed high calorie food by ivs and may be given a NG tube. she seems more settled now and certainly feeding times are less stressful. 

i rounded this am with about 20 drs and staff members and they decided the feeding choices as well as the next test. we also have a wonderful OT eval which concluded that sloane has great bodily functions aside from those of her upper airway.  tomorrow, Sloane will have a die contrast test of her esophagus to see if there is any type of anatomy issue with her windpipe and esophagus connection. if this test doesnt show anything, sloane will be having a swallow test to see if she is having trouble coordinating her swallow muscles and breathing. those are the 2 top tests being done, that i feel at this point need to be discussed. both have solutions and all of the potential issues presented to me today have solutions THANK GOD! 

i think you will all be relieved to hear that i finally cried out for help (literally) and had to call my dad & ronda to come stay with me. i was able to express some things out loud. which only means i may be able to verbally discuss this rationally with all of you soon.

sloane had a good afternoon and as per usual perked up when her daddy got there so they could do their whole flirting skit!! its the cutest thing. she doesnt rouse for her momma but when the "baby whisperer" shows up,...she is all about staring at him and smirking :)

im sure or i hope there will be more to come tomorrow..keep praying that we get some answers..xo