Memory Lane 8/25/2010

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8/25/2010

(we had made the very difficult decision of having a g-tube surgically implanted in Sloane. this decision proved to be one of the best we have made throughout our journey. sloane's g-tube was implanted from 
august 31, 2010 to june 27, 2012. sloane was 1 month and 5 days old and we had been in the NICU for one month)

hi everyone! sorry we havent emailed in a bit. ive gotten some check ins so i know its time to send out an update!! we weighed in last night at 7lbs 15oz!! YAHOO! 

this week has been a testing week to get ready for sloane's g-tube surgery. alan & i have decided after a very long deliberation period to have a g-tube surgically implanted in sloane rather than bringing her home with a nasal feeding tube. 

in preparation for surgery, we had an upper GI test to check the anatomy of sloane's gi track which came back normal. this wasnt surprising to us bc she is a poopy pants most days! 

yesterday was interesting! we went to nuclear medicine at ri hospital and had radioactive material put into her feed and watched/tracked sloane's reflux as she digested it. they strapped the blueberry to a table for almost 2 hours. she was so good though! truly amazing how strong she is...much stronger than the momma. this test showed multiple episodes of reflux. we are waiting to speak w/ the ent and surgeon to decide if/how this changes the g-tube surgery. there are some other medical procedures they can do to help the reflux.

i think sloane is getting tired of all this shit!! lol!! she slept monday night from 11pm until 8am today. now, of course, she had wakeful periods here and there but she was down for the count as we say in my family. she did have a week of screaming from 6 to 11pm straight so she may have fizzled herself out. they tell me when she is in her rage that colic has begun!! i think its colic and frustration bc she cant suck/eat by mouth (she is such a good sucker) as well as the fact that babies get rid of energy by nippling so she needs some extra activity to release some energy!! the pacifier isnt doing the trick some days.

its looking like surgery for th g-tube and reflux (if need be) will be tmr or friday. ill let you know when we know so the hardcore praying can begin.

 we have met with the surgeon two times and she seems very nice. we will see her again tonite or tmrw nite to make some final decisions. im worried about having my blueberry put under again as much as i worry about seeing her intubated and on a ventilator when she comes back. i know it'll be days of seeing her under the weather. the nurses have started to talk to us abut what will happen after surgery. once sloane recovers, we will begin our training to come home. 

xo, sloane's mommy & daddy