On last Thursday, I finally called Dr. Reibman about the "coughing fits" and frequent wheeze sound. She felt as though the coughing fits where bronchial spasms as result of the viral (croup) infection. So today, we went in at 4pm for a tutorial on Sloane's new inhaler. We are going to use it once a day for one week to see if it diminishes the coughing after active behavior. I was also happy that Dr. Reibman heard the ever so slight wheeze while we were there. She commented on it and also noted that Sloane was at rest and had it. This I told her it is common. The inhaler may also help it too.
I had talked to a dear friend before the appointment who took away some of my anxiousness away. She said "oh, Sloane is going to think she is a big shot with that new gadget." I hadnt thought that at all. I was more concerned that it would be a scene of "hold the toddler down." But once she said it, I thought....hmmmm, maybe???? And she was right!! Sloane gave us no issues with practicing with it at the drs. today. She calls it her "ppsstt, ppsstt ting"
Now, of course, I will review this all with Dr. Rahbar and his team next Tuesday to get a stamp of approval. I am certainly not against seeing any type of specialist needed to address this if it goes beyond a ped or ENT issue.
This morning, we went to visit our family friends with the triplets. Alex, Lucas and Sam were born in July two months early. They are growing by leaps and bounds now and pretty fabulous if you ask Sloane. She loved them! What I was most blown away by was the triplet's mom! Lori runs a tight and organized ship. Like John and Kate plus 8 before fame ruined their lives. I was amazed at how neat and scheduled their home was as well as their routine. It was inspiring on one hand and a reality check on the other.
I have closely followed the triplets journey for over a year now as they were fertility babies like Sloane, spent time in the NICU like Sloane, had swallowing difficulties like Sloane and one had a feeding tube like Sloane. Not to mention, that the triplets share the same surgeon and ped as Sloane so we talked a lot. I was always surprised by Lori's calm approach to everything. Calm isnt a word I would use to describe myself way back when in the NICU. Seeing the triplet's house today and watching their routine made me think that sanity with multiples is possible AND made me think "what the f was your problem?" that you were so crazed about one child with one medical need?? Lori is dealing with 3 babies all with their own set of needs and appears to be handling it with a sense of ease.
It was nice today to have someone to talk to about all the medical stuff. We chatted about things that we, as moms, have in common because of our child's medical concerns. We compared our children's Mickey Button sites and laughed about the evilness of reflux. It was refreshing to share war stories and swap ideas. I had always thought that when I was in my darkest hours of reflux, feeding tube, colic, and laryngeal cleft how great it would have been to have a mom friend who also had a child with a medical need. My conversation with Lori today confirmed that! It would have balanced me out some.
One week until Dr. Rahbar......healthy thoughts everyone so we make it to our rescheduled swallow study!
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