Tuesday, September 17, 2013

In Record Time

Today was one for the record books. After being 30 minutes late for Dr. Rahbar (a potty stop and no parking available), we were still in and out of his office in one hour. A record.

Sloane did very well. She entertained herself, during our very short wait, running around the exam room. Daddy's orders! This am, as we left, he said "Babe, remember let her run around until he gets there." LOL Almost on cue, Dr. Rahbar came in and was greeted by our frequent friend..."Miss Wheeze".  Before I could motion toward Sloane and her friend Miss Wheeze, Dr. Rahbar looked in her direction and he himself listened intently to Sloane who was now resting after her sprints around the room.

We chatted for a few minutes. Sloane was happy to tell him how she didn't share at preschool yesterday and instead asking for a turn, she took all the toys from her friends. SUPER!????!!! Another blog for another day. Once we are done with our "sharing is caring" convo, Dr. Rahbar lets Sloane know that he is going to take a look down her nose. He did a soft bedside scope today which I welcomed. He hasn't taken a look in Sloane's airway in over an year.

Once the doc told Sloane about the scope, it was like she was in a trance controlled by his words. This man has the most wonderful bedside manner!! She did as he asked and even got involved in the scope. I could not have been prouder of her. The truth is though...mammie and I agreed that we would have gladly had that probe sent down our noses too after Dr. Rahbar asked us. There is just something about the way he approaches the situation that makes you want to be part of the team. His team. The please put that foreign object down my nose for a minute of two team......HA!

Sloane's cleft looked good. Miss Wheeze, on the other hand, didn't sound good. Dr. Rahbar handled me with the conversation about him taking a look in Sloane's airway the same way he handled Sloane with the scope. I listened as he clearly discussed why he wants to take a deeper look in her throat.

Sloane, as we knew, was born with tight vocal cords. Her cords do not open as much as they should. It has had no effect on her speech or projection of sound....as anyone who knows her can tell. Chatty Kathy!! Dr. Rahbar mentioned her cords to me as a reason why she frequently wheezes. They may not open enough when she needs more air after bring winded...hence the wheeze. He wants a deep look to see if that is the case OR if Sloane was born with a narrower airway which could also be a reason for Miss Wheeze and Sloane's frequent croup events. Dr. Rahbar does feel that Sloane's wheeze is not a sign of asthma at this point. Miss Wheeze resides in Sloane's throat not in her lungs by the sounds of it.

Having a deeper look will help determine Why? Miss Wheeze pops up every once and a while. What will happen once we have the reason for the wheeze is not clear at this point. Sloane having another anatomical defect in her airway would not be surprising bc her Laryngeal Cleft was so severe. Neither her tight cords or narrower airway concern me at this point...I think if they were major issues, we would know about it by now. Both are not ideal, but neither appears to be life altering.

I signed all the papers for the scope...not  thrilled about Sloane having anesthesia again or staying over night at the hospital........but I agree that having a reason for the wheeze at this point is almost necessary. My hubby is traveling so the date for the scope is on hold until we can discuss our thoughts together and make a plan  but, we did decide that we would get the scope down in record time....well before the start of cold & flu season.

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