Three years ago at this exact moment, life in our home was the complete opposite that it is right now. Today, September 10th, is the day we took Sloane home from the NICU. She was 10 days shy of 2 months old. Our home was crowded with medical supplies, on high alert, scheduled down to each minute of a day, and a revolving door of our circle of trust. I have blogged about the scene back then many times I wont bore you with the details again.
Tonight, 3 years later....our home has no medical supplies, is relaxed on all accounts and hasn't had a player in the circle of trust drop by for anything other than a visit. Actually, the only thing I can hear right now is my own munching on carrots and the crickets outside. The hubby is away on a trip so the house is on lock down and silence is welcomed.
Next week at this time, we will have seen Dr. Rahbar and I'll have an update on our LC world. We have all started to gather our thoughts, opinions and questions. Mammie and I are making the trip as she has for all the appointments over the past 3 years. She has clearly earned her place to voice her thoughts and opinions openly. The 3 of us are in agreement that at this point we DO NOT feel as though Sloane needs a 2nd operation or a exploratory look in her airway. She has done well in the last 4 months is the consensus. With only 1 week to go, I almost wince at typing these words. Dr. Rahbar may come to the table with an opinion or an outlook that we haven't considered and that may be a game changer.....
Three years ago, I know for a fact I did not sleep tonight. We did not sleep for weeks after we arrived home with Sloane. The whirl of the feeding tube pump and fear of aspiration kept us up around the clock. Three years later, I know that I am exhausted and will eagerly hit the sheets momentarily with only fears of over sleeping lingering...LOL
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