Thursday, October 24, 2013

Why?? Huh??

So you should see the looks on people's faces when we say that Sloane is having an exploratory looksee of her airway. Words that come to mind are: baffled, confused, judgemental, and concerned.  The decision to allow to Dr. Rahbar to explore Sloane's airway was not made lightly and although, I know it is the right one...that does not mean it doesn't come without guilt and worry. SO I completely understand the looks on our family and friend's faces when we talk about December 9th.

We have put Sloane under anesthesia more times in 3+ years that our entire family combined. It is not something that comes easily, not to mention that this time, Sloane will be completely aware of what is happening. In the years past, Sloane was too young to connect the dots. But considering that she is obsessed with medical things these past few weeks, to say I am nervous is an understatement. Sloane has been asking about hospitals, ambulances, doctors and all that comes with them since Uncle Chucka took a spill over a month ago and landed himself in an ambulance right before her big eyes. Sloane was terrified as well as like a dog on a bone for details....she wouldn't stop or couldn't stop asking about Chucka's boo boo and its progress. Add this new obsession to the fact that her favorite dress-up attire is her doctor's coat and bag, I am thinking our trip to Children's will not be quiet.

Sloane, in regards to her laryngeal cleft, is over it. When she takes and swallows a big sip and we comment on it with "little sips!", she looks us straight in the face with a "I am not coughing, momma, see." And, the truth to told, to all my LC followers out there...there is a light at the end of the sip and swallow tunnel......she isn't coughing. Sloane is managing all liquids in all vessels fantastically about 90% of the time.

This exploratory looksee isn't about her Laryngeal Cleft. It is about her ever so present wheeze. Although we welcome all the information we can gather about Sloane's LC, that isn't the point to this procedure. Dr. Rahbar hasn't been scuba diving into Sloane's airway since her surgery in March of 2011; he has only been fishing.....if you get my drift! I'd like to know what her cleft looks like 2 1/2 years later! Her airway is so much larger considering her surgery was done when she was 9 months old.....so I am thinking Dr. Rahbar will get a bird's eye view this time???

As for the wheeze, who has been showing up around here every few days, I am more than interested what her place of origin is. Does she reside in Sloane's tight vocal cords, her cozy narrow airway, or is she whispering...asthma ever so quietly....up from her lungs?? This is truly why we want this exploratory looksee. Sloane is getting older and her days of running on the soccer field, jolting across the tennis court and tapping her way thru Gold Ship Lollipop are nearing. So, when Miss Wheeze shows up...we want to know why??? And hopeful that December 9th will answer that question.

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