Friday, February 7, 2014

La, La, La

After teaching many years and having 2 Summer months off, I have learned that I am a person who functions better with a schedule! My lifestyle right now is a bit loosey goosey and it's being reflected in my blogging! When I have a schedule, I am much more efficient. The days are drifting by and I haven't gotten a handle on what to do when so it all gets done. My MIL asked me yesterday why I wasn't blogging anymore and I had no good answer! 

Sloane is status quo until May 5th. We saw Dr. May (aka Dr. Palm/pulmonary) last week and decided to keep Sloane on the inhaler until one month after surgery. It has helped Sloane, but certainly isn't the answer to our aspiration issue. Sloane is junky as most preschoolers are these days....I can't help but think that her junk isn't just germ related. Sloane may just be aspirating more these days because she is a big girl who drinks more volume faster and can't process it. The inhaler is helping that because its steroids are designed to hit deep down in the crevices of her lungs where the aspiration secretions are sitting. This type of inhaler isn't a quick Asthma type although that kind would be nice too!

Sloane's junky cough isn't affecting her 24/7, but it is when she is actively playing. Our trip to the playground last week was not successful at all. She actually could not catch her breath from all the coughing. Not a fun sight! I am a bit worried because tomorrow she is starting gymnastics for the 1st time. I am hoping that she won't get too winded! Sloane has been dying to start tumbling and jumping!! It should be interesting. 

In spite of la, la, la approach to life these daysI tried to be proactive in regards to Sloane's cleft tweak. I decided why wait until we see Dr. Rahbar on March 4th for a check up to schedule the surgery???? At that point, he may be booked up until summer. So I called and scheduled it a few weeks ago. The thing is: we know her cleft needs to be closed more so there really isn't anything to discuss other than the timing of it all. And the timing was easy to narrow down......let cold/flu season end and the fun of summer not begin! I wanted to sneak it in before Sloane hit the beach! May 5th is day.

Until then, we hope that Sloane stays healthy! She had a virus last week but fought it off like a champ! Once the fever showed up, my heart sank! Secretly, I am anxiously waiting for all the secretions/junk to get the best of her lungs. I worry constantly about it....feeling her head....listening to her breath....mentally noting the sounds of her coughs....and in between all of that I remind myself that she is a normal preschooler who is like a petri dish sponging in every germ scooting by her. Last week, when the fever burned on in....I remained calm and quiet...just waiting! And the virus blew in and blew out!! Thank you very much don't let the door hit you on the way out.....hahaha

I am convinced that Sloane is spending too much time with me. She has started redecorating our house and people's houses that we visit. Asking me if I like her decorations?? Lol! And yesterday, she emptied the toy closet out and reorganized it.. Telling me she wanted things to look better for her Valentine Party...which she isn't having so????? Last week, She moved very possible thing she could pick up in Titis living room to decorate! She forgets the re. On decorate!! Lol!! I need to remind her of the proper terminology!! Ha!

Next, she has been publicizing information. Now, I think I have said in the past that my hubby called me Oprah because I blog and text and chat for long stints on the 
phone. Well, I think Sloane has taken on the career of the next Barbara Walters... In the past week, she has reported all sorts of home stories to her teachers at preschool! They have shared them or maybe just some of them with me....ha!  Not only is she telling them the story, she is telling them it with complete dramatic actions. Not good! The stories she has reported to the teachers aren't exactly about the 3 of us saying grace before we sit down to each dinner in front of the fireplace!!! Hahaha

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