A Ju Monster

Sloane has been doing VERY well drinking her thickened juice. We are heading to the swallowing clinic tomorrow for our last appointment of swallowing therapy before we see Dr. Rahbar next month. The plan was if Sloane did well with honey consistency thickener we could MAYBE try nectar consistency. Nectar consistency is the thickness of a drinkable yogurt drink. We will see what Courtney, our SLP thinks about Sloane's progress tomorrow and if we can progress with introducing her to thinner liquids. Because many times, Sloane does not drink in front of Courtney for some reason....I emailed Courtney a few videos over the last few weeks of Sloane drinking. It can be very difficult when she refuses liquids during therapy. I get all sweaty and nervous because I want Courtney to see her progress and grammie (our wingwoman on all drs. appts.) becomes Sloane's cheerleader and then spokesperson. Grammie (aka mamie) makes sure she tells Courtney exactly what Sloane can and can not do. It is very sweet. I do hope tomorrow goes well, but Sloane is in charge. CLEARLY!! 


So there is a monster in our house. The JU (jew) monster. Sloane has begun standing at the refrigerator yelling for ju at all times of the day. I know what she is looking for...2oz. of strawberry/banana V8 fusion mixed with 2oz. of water shaken straight up with one packet of honey consistency Simply Thick. She is up to 2 cups a day! That's her legal limit! Hahahaha The JU monster appeared on Saturday and has been in rare form all week. Today, she wandered into my bedroom gulping. I looked away for a moment and the sippy cup vanished in thin air. No where to be found. I looked everywhere. After taking a break to make the bed, I pull the sheets up and pulp I hear. I think realize that the JU monster put her sippy cup of red sticky juice in between my foot board and brand new gorgeous white comforter that I have waited 5 years to get. A perfect bar height for her to rest her drink! Not a perfect place in my opinion. Sloane walks around this house with her JU like she is a big shot!! It is hysterical!! There is a very small, very cute, very assertive JU monster in our house. I hope she rears her pretty little mouth tomorrow at therapy. 


Tonight is the eve of Sloane's bronch at Children's Hospital last year. Tomorrow was the day we would get some answers!! I remember tonight last year. The nerves, the anticipation, the fears, the excitement. So tonight I will say a prayer for all the parents preparing for surgery tomorrow and that their children have as successful recoveries as our JU monster did last year.